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Hypermobility and Hip dysplasia -
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TOPIC: Hypermobility and Hip dysplasia -

Hypermobility and Hip dysplasia - 4 years, 3 months ago #65623

  • Claradee
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  • Gold Forum User
  • Posts: 260
Just wanted to share a forum that's got a thread about hypermobility and hip dysplasia. go to hipchicksunite.ning.com/group/hypermobilityandthrorpao

May be interesting for those who have children with hypermobility.
Clare - Bilateral CDH dx 1973 age 3,
L open reduction
L innominate osteotomy
Bilat derotation varus proximal femoral osteotomy
R triple pelvic and femoral osteotomy
L trochanteric transfer
L Hip replacement March 2011, R hip replacement May 2013
Daughter Emily b2001: bilateral DDH treated with Pavlik Harness but still monitored for shallow R hip

Re: Hypermobility and Hip dysplasia - 4 years, 3 months ago #65650

  • lenacourt
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  • Posts: 5018
thanks, will take a look.
Olivia 26/9/06 - Bi-lat CDH DX Jan 08 age 16mths. 2 closed & 1 open reduction-11mths in cast failed. Bi-lateral pelvic & fem ost's cancelled due to complications from Ehlers Danlos Syndrome.
Night time abduction brace for the foreseeable future.

Re: Hypermobility and Hip dysplasia - 4 years, 3 months ago #65678

Hi Lena

Just read the link and see that you and your family are hypermobile. just wanted to pick your brain if poss. Amelie my 2.5 year old was seen by Darcies surgeon a couple of weeks ago to check her hips as they click. He had an x ray done as he agreed the left side was 'clicking' and very slightly shorter than the right. anyway the x ray was clear. he did however say she is extremely hypermobile....all joints. i asked if anything needs to be done about it and he said just not to let her do party tricks when she realises that she can do strange things(I have it aswell....can pop my hip out and back into it's socket, double jointed fingers etc) But now i am wondering if i should have questioned him more and asked about follow up for Amelie. Maybe Amelies case is not severe enough to need follow up. It certainly doesn't affect her at the moment.

your advise would be appreciated

Sunneva xx

Darcie Thorpe DDH diagnosed May 2010 Closed Reduction June 2010. 20 months of casts and braces. Treatment failed.Pemberton Osteotomy 25/06/12, metal work due to come out 06/08/12 and will go into abduction brace

Re: Hypermobility and Hip dysplasia - 4 years, 3 months ago #65680

  • lenacourt
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  • Posts: 5018
We have been told a big NO for party tricks as it can damage the joints and cause problems later in life. Popping your joints in and out can lead to all sorts of issues, wear and tear on the joints etc.

Exercise and building muscle tone are the most important things with hypermobility. It's caused by the connective tissues in the body being too weak, therefore it's important to build up the muscles around the joints to help support them. Over extending your joints is not good, so good seating and posture is important. Also good footwear is important. People are born hypermobile and live perfectly normal lives, they become good gymnasts or ballet dancers. Some loose the hypermobility as they grow older. It's only when the hypermobility causes too much stress to the joints that it starts to become a problem, like if dislocations or subluxations occur (the joint slips partially out, but not a full dislocation) and this in turn will start to cause pain. Fatigue is common in hypermobile people because the body is working harder to hold itself together, thus the importance of strong muscles. Once the symptoms of hypermobility grow and include pain and fatigue, it then becomes Hypermobility Syndrome. Thats what we all have. Although Olivia has inherited it from both me and her dad, which has resulted in EDS.

I was only diagnosed last year, throughout my childhood I had strains and sprains in my joints, a lot of joint pain and back pain but I was told it was growing pains. Now i know it was hypermobility and damage has been done. My back is a mess, mild scoliosis (curvature of the spine) and 3 prolapsed discs.

The best advice i can give you, and it's only from a fellow bendy bod, not an expert, is keep her fit, swimming is good, walking lots, anything that keeps her physically active. Try to discourage party tricks. Make sure her ankles are supported if they are weak, with good shoes and keep a check on how she sits, avoid "W" sitting and slouching to keep her spine in check.
Olivia 26/9/06 - Bi-lat CDH DX Jan 08 age 16mths. 2 closed & 1 open reduction-11mths in cast failed. Bi-lateral pelvic & fem ost's cancelled due to complications from Ehlers Danlos Syndrome.
Night time abduction brace for the foreseeable future.

Re: Hypermobility and Hip dysplasia - 4 years, 3 months ago #65733

Thanks a mill Lena. You've put my mind at ease. Another quick question. Darcie has started to stand in her cast...Are there any risks if she does this with regards to her hip?I cannot turn my back on her now as although she is pulling herself up on things, she fell backwards today....luckily I was beside her and caught her!! Any tips on this? xxx

Darcie Thorpe DDH diagnosed May 2010 Closed Reduction June 2010. 20 months of casts and braces. Treatment failed.Pemberton Osteotomy 25/06/12, metal work due to come out 06/08/12 and will go into abduction brace

Re: Hypermobility and Hip dysplasia - 4 years, 3 months ago #65737

  • lenacourt
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  • Posts: 5018
Many kids walk in cast, there's no risk to the hip at all.
Olivia 26/9/06 - Bi-lat CDH DX Jan 08 age 16mths. 2 closed & 1 open reduction-11mths in cast failed. Bi-lateral pelvic & fem ost's cancelled due to complications from Ehlers Danlos Syndrome.
Night time abduction brace for the foreseeable future.
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Welcome to STEPS. We are a national charity supporting children and adults affected by a lower limb condition such as clubfoot or a hip condition. Our website is a great source of information but if you would like to talk to someone please call our helpline on 01925 750271 or email info@steps-charity.org.uk.

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