A guide to other Lower Limb Deficiencies

For many parents the diagnosis of a child with a lower limb deficiency can be a shattering experience which may leave you feeling isolated and alone. Lower Limb deficiency is a rare condition and an overwhelming need for good information and emotional support exits. You will probably have many questions and be asked to make decisions which you may feel ill equipped to reach.

What most parents need to reassure them is clear, factual information about diagnosis, treatment options and caring for a child with a Lower Limb deficiency. Hopefully, this section of the website will help you gain an understanding of your child’s condition and show you how to cope effectively with lower limb deficiency.

Families supporting children while they are being treated often have widely differing experiences and cope in their own way with the challenges that come up.  The importance of assessing children individually for the most suitable treatment is stressed. 

The information here offers guidance - it describes a range of experiences that you might share.  It cannot cover everything, but it should help you start to prepare yourself, and your child, for what you might meet in the months and years ahead.

You are not alone

We understand that this can be a very confusing time. If you have questions, concerns or simply feel you would like someone to talk to - please do not hesitate to contact us - we will be happy to help. You can call our Helpline on 01925 750271 (Monday – Friday 9.30am to 4pm) or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

You may also want to visit our online community where you will find a wealth of information written by parents with children affected by a Lower Limb deficiency. You will also be able to read personal stories, shared experiences, ask questions and receive encouragement.