Even if you have already completed a database form do let us know about developments.

This helps us to appreciate the needs of supporters and allows us to match Family Contacts more accurately.

You may wish to become a Family Contact some time after initial diagnosis once you have some experience to pass on. Do let us know if you wish to be added to the scheme.

We particularly want to know whether people continue to be affected by their conditions as they grow up and reach adulthood.

Contact us by phone 0871 717 0044 or email info@steps-charity.org.uk